International Hidradenitis Suppurativa Patient Guide
What Is Hidradenitis Suppurativa (HS)?
Hidradenitis Suppurativa (HS) is a chronic, inflammatory skin disease that causes painful lumps, abscesses, and tunnels under the skin. It most commonly affects areas where skin rubs together, such as the armpits, groin, buttocks, and under the breasts.
HS is not contagious, not caused by poor hygiene, and not a simple skin infection. It is a complex condition involving inflammation of hair follicles and the immune system.
In our clinic in Türkiye, Hidradenitis Suppurativa has been successfully treated for many years by Prof. Dr. Bekir Atik.
How Does Hidradenitis Suppurativa Start?
HS begins when hair follicles become blocked and inflamed. Over time, this inflammation can lead to:
• Painful nodules
• Recurrent abscesses
• Chronic drainage
• Sinus tracts (tunnels under the skin)
• Permanent scarring
The disease often follows a relapsing and progressive course, meaning symptoms may worsen if not treated appropriately.
Common Symptoms of HS
Patients with Hidradenitis Suppurativa may experience:
• Deep, painful lumps under the skin
• Recurrent boils in the same areas
• Drainage of pus or blood with unpleasant odor
• Scarring and thickened skin
• Restricted movement due to pain
• Significant impact on quality of life
HS is more than a skin condition—it can affect daily activities, work, mental health, and self-confidence.
Who Is Affected by HS?
HS usually starts:
• After puberty
• Most commonly between ages 20–40
• More frequently in women, though men may develop more severe disease
Risk factors may include:
• Genetic predisposition
• Smoking
• Obesity
• Hormonal influences
However, many patients develop HS without any clear risk factors.
Stages of Hidradenitis Suppurativa (Hurley Classification)
HS severity is commonly classified into three stages:
Hurley Stage I
• Single or multiple abscesses
• No sinus tracts or scarring
Hurley Stage II
• Recurrent abscesses
• Formation of sinus tracts
• Limited scarring
Hurley Stage III
• Widespread disease
• Multiple interconnected sinus tracts
• Extensive scarring and chronic inflammation
Understanding the stage is crucial for choosing the most effective treatment strategy.
Is HS the Same as Acne or Infection?
Although HS may resemble acne or recurrent infections, it is a distinct inflammatory disease. Antibiotics alone often provide temporary relief but do not cure advanced HS.
This is why many patients say:
“I’ve tried everything, but it keeps coming back.”
How Is Hidradenitis Suppurativa Treated?
Treatment depends on the stage, location, and severity of the disease and may include:
• Lifestyle modifications
• Medical therapy (antibiotics, biologics)
• Pain management
• Surgical treatment for moderate to severe HS
For advanced cases, surgery is often the only definitive treatment to remove diseased tissue and prevent recurrence.
Living With Hidradenitis Suppurativa
HS can be physically and emotionally challenging. Many patients experience:
• Delayed diagnosis
• Misunderstanding by healthcare providers
• Social isolation
Early diagnosis and treatment by an experienced HS-focused medical team can significantly improve outcomes and quality of life.
You Are Not Alone
Hidradenitis Suppurativa is a lifelong condition, but effective treatment is possible. With a personalized and multidisciplinary approach, many patients achieve long-term relief and regain control of their lives.